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DAS score below 5.1 and RA not well controlled? We need you! Options
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NRAS-Emma
#1 Posted : Tuesday, February 19, 2013 11:50:10 AM Quote
Rank: Administration

Groups: Registered, Administrators

Joined: 3/20/2012
Posts: 87
Dear Members

We are currently writing a consultation response for NICE on access to rheumatoid arthritis drugs. We are looking for Members who have a DAS score below 5.1, and therefore don’t quite meet the criteria for biologics, and whose RA is not well controlled (really struggling, worried about work, etc). If this applies to you and would like to provide us with a paragraph about your experiences and the impact this has had on you, then we would be really grateful if you could get in touch with us as soon as possible.

The deadline for us to respond to NICE is Friday, 22 February, so we will need to obtain written comments and phone interviews in the next couple of days. To get in touch regarding your experiences, please contact our Government Affairs Manager, Jamie Hewitt, on jamie@nras.org.uk

Thank you in advance for your help.

Emma


Emma Seymour
NRAS Membership Supervisor
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RichC
#2 Posted : Wednesday, February 20, 2013 3:30:29 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 8/30/2010
Posts: 507
Location: Gravesend
Done :)
might be a bit late but only just seen this , :)

Regards

Rich C
"The difference between 'involvement' and 'commitment' is like an eggs-and-ham breakfast: the chicken was 'involved' - the pig was 'committed'."
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NRAS-Emma
#3 Posted : Wednesday, February 20, 2013 4:25:25 PM Quote
Rank: Administration

Groups: Registered, Administrators

Joined: 3/20/2012
Posts: 87
Not too late at all! Thanks Rich, I'll make sure Jamie sees it.

Best wishes, Emma
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